This was the big day for lil e's EMG. We got up early to get down to Children's Hospital on time, so there would not be any mix ups or problems. The only problem we encountered was that no one seem to know where the EMG was to be administered. Well after a few ups and downs on the elevator and down different hallways, we asked a medical person who just happened to know where we were supposed to go.
We were able to find the location and waited until someone showed up. There was some entertainment in the waiting area. A big Plexiglas box with balls and levers that moved entertained lil e while we waited. We were finally seen and got right to work. I was told we were going to do an EMG and a test where they insert a needle into his muscle, but that wasn't done, instead a RNS, repetitive nerve stimulation was done. They placed electrodes on his right side of his neck and shoulder and repeatedly shocked him at different levels. He initially was able to tolerate it, but as the test proceeded he was getting upset, which is totally understandable. Anyway the results for this test came back negative for general myasthenia, according to this specialist. He could still have ocular myasthenia, that is why more blood testare being done and will be sent to a lab in Boston, that specializes in neurology type blood work. We will have the blood drawn for this on Friday when he goes for his CT on his thymus.
Little E and big sister being silly outside Ronald MacDonald House.
Fun at the park before heading out to get some lunch. Beautiful day!
Silly sister, just goes to show you are never too big to have fun...
No comments:
Post a Comment